When Brandi McGlathery held her newborn son for the first time, she saw a perfect baby, "..he had five fingers on each hand and five toes on his little legs, nothing is missing, except for his nose.
Although he struggled a bit, Eli took her breath through months naturally even while breastfeeding. Eli was born on March 4, 2015 and was immediately taken to the USA Children's and Women's Hospital in Mobile, Alabama, so the doctor can give him a tracheotomy to help him eat without difficulty for breathing.
Says McGlathery and his boyfriend, Eli's daddy, Troy Thompson is sure to cleanse his tracheotomy and keep them infection free. They are hoping he can get in the future reconstruction surgery to form a nose.Tessa Evans is now 18 months old, and her parents share their experiences with congenital arhinia due to medical misinformation that says children born with it have poor mental and physical abilities. "That statement is false on many levels," Evans said.
While insurance pays for some medical costs, there are question marks about rare diseases, such as reconstruction surgery for Eli's nose can not be covered. McGlathery says, "..they do not know what treatments work and are skeptical of reconstruction surgery because it is cosmetic."
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